Chronic Fatigue Syndrome (CFS, CFIDS, ME) is an insidious, frightening illness that causes profound disruptions
to life. It drains energy, intelligence, memory and personality. It is absolute exhaustion.
CFS brings great difficulties. It has no known cause, is effectively incurable and there is not even an
established approach to treatment. It is maddeningly unpredictable in its daily severity, its set of symptoms as
well as their manifestation.
This illness also generally deeply affects the lives of those closest to the sufferer as it steals that someone
away from them - the person they knew either disappears or is, at the least, quite changed. Physical and emotional
burdens are placed upon them as well as the sufferer.
CFS is not terminal or directly life threatening, but this does not diminish its devastating effects. It is
usually not visible, but this does not mean it is trivial. It can be difficult to determine, but this does not make
it any less sinister. It is regarded as a serious illness because it is an impediment to leading a 'normal'
life.
This is no over-dramatisation of a condition. The fact is, CFS is characterised by a lack of appreciation of its
devastating effects and is therefore often trivialised.
CFS is typically misunderstood as just 'tiredness', however CFS is very, very different to tiredness or fatigue
experienced at some time by most people. It is more accurately described as an energy issue - no energy, extreme
exhaustion.
However, fatigue and exhaustion are not the sum of CFS - it encompasses a whole range of other ailments or
conditions. It amounts to experiencing several illnesses either all at once or progressively, with no apparent
pattern or enough meaning to enable accurate prognosis by those qualified to reach some conclusions. That the
illness varies with each individual complicates matters further.
Possibly the most frustrating, and lesser known, feature of CFS is the fatigue of the mind often referred to as
'brain fog'. Cognitive malfunction and memory loss are the most prevalent signs that something is terribly amiss
with the brain. The powers of comprehension, deduction and reasoning vanish - then the sufferer cannot remember
anything anyway! Being rendered mute when all vocabulary disappears leads people to question the unfortunate
sufferer's sanity.
An aspect that always seems to puzzle people is that sufferers often look well. This is the invisibility of CFS
- just because the outside looks fine, it is not always an accurate indication of what is/is not going on
inside!
At times when energy levels may be a little higher, sufferers can 'perform' much better and therefore may be
judged as being 'better'. This is another totally exasperating facet of CFS - the illness constantly fluctuates,
both in severity and characteristics. One day may represent total physical collapse, the next with a little more
energy but afflicted with 'brain fog', the following unable to get up due to pain, intestinal upset or a night of
very little sleep, then a day when there is sufficient energy to take a short walk. It never leaves, though.
Chronic in its name helps to describe the relentlessness of CFS - as yet there is no cure and it can continue
forever. This sounds bleak and for some their lives remain exceedingly bleak. The more fortunate are able to manage
the illness and gain some gradual improvement so they are able to lead a viable life. Some actually achieve a level
of recovery, but live with the threat of any or all symptoms returning if they do not maintain a carefully
controlled lifestyle.
Some emotional instability is not surprising once the depths of this illness are realised. Learning to accept
CFS and deal with any resultant emotions is difficult enough, without having thought and reasoning functions not
working. It's like waging war on a number of fronts without any prior knowledge of how to approach a conflict,
without any intelligence (literally!), no idea of acquiring weapons and no troops. Little wonder sufferers become
agitated or depressed - or both.
Imagine waking up each day with flu...
every day, every week, every month... year after year...
Then, on top of the flu, you are sleep deprived...
Remember how it feels after partying hard or studying for a couple of days and nights without sleeping,
or when a baby or something else has kept you awake for nights on end...
http://www.cfs-fm.com - please include this address if article is reproduced so sufferers
or their carers can access some practical help.
Anne is the author of the Chronic Fatigue Syndrome & Fibromyalgia Management series of books.
Through practical, quality knowledge these books provide a whole range of strategies for a sufferer to 'get back
their life' by taking control away from their illness.
Create Energy! delivers nutritional secrets, while another five books deal with symptoms management.
Anne is a qualified nutritionist as well as having suffered from CFS and Fibromyalgia. Information and books
available at http://www.cfs-fm.com